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Resources for People with Long COVID

Although many people with COVID-19 get better within weeks, some people continue to experience symptoms that can last months after first being infected, or may have new or recurring symptoms at a later time. This can happen to anyone who has had COVID-19, even if the initial illness was mild. People with this condition are sometimes called “long-haulers,” and this condition is commonly known as “Long COVID.”

In March 2024, HHS launched its Long COVID as a Disability webpage(link is external) with information on disability civil rights protections for people with Long COVID that substantially limits one or more major life activities.

On July 31, 2023, HHS announced the formation of the Office of Long COVID Research and Practice(link is external), which will enhance efforts being undertaken across the U.S. government to improve the lives of those who continue to experience the long-term impacts of the worst public health crisis in a century.

In June 2023, the Social Security Administration issued technical guidance(link is external) for health care and service providers who evaluate disability for people with Long COVID. While not intended for consumers, the guidance may be helpful in understanding how determinations are made. 

On August 2, 2022, HHS delivered two major reports to President Biden in response to his April 5, 2022, Memorandum on Addressing the Long-Term Effects of COVID-⁠19

  • The Services and Supports for Longer-Term Impacts of COVID-19 Report (Services Report) outlines federally funded support and services that can help individuals experiencing the longer-term effects of COVID-19, including Long COVID and its associated conditions, mental health, substance use, and bereavement. 
  • The National Research Action Plan on Long COVID (the Research Plan) proposes a comprehensive and equitable research strategy to inform our national response to Long COVID.

    ACL partnered with 13 other federal agencies in developing these reports, which together describe the wide range of services and supports available nationwide and lay out a research strategy going forward. ACL’s programs, and the disability and aging networks that provide them, offer a wide range of services and supports to help people with disabilities — including disabilities caused by Long COVID — and older adults live independently and fully participate in all of life’s activities. For more information and to help spread the word, visit COVID.gov/LongCovid.

For the 31st anniversary of the Americans with Disabilities Act in 2021, the White House published this comprehensive package of resources(link is external) for people with disabilities, including people with Long COVID. It included some of these resources from across the federal government:

We'll continue to add resources to this page, and we'd love to add resources from across the aging and disability networks — please share yours!


Last modified on 05/01/2024


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